Polyposis registries
You don't need to be Editor-In-Chief to add or edit content to WikiDoc. You can begin to add to or edit text on this WikiDoc page by clicking on the edit button at the top of this page. Next enter or edit the information that you would like to appear here. Once you are done editing, scroll down and click the Save page button at the bottom of the page.
Please Take Over This Page and Apply to be Editor-In-Chief for this topic: There can be one or more than one Editor-In-Chief. You may also apply to be an Associate Editor-In-Chief of one of the subtopics below. Please mail us [1] to indicate your interest in serving either as an Editor-In-Chief of the entire topic or as an Associate Editor-In-Chief for a subtopic. Please be sure to attach your CV and or biographical sketch.
Overview
Polyposis registries exist for the purpose of understanding the genetic disease familial adenomatous polyposis. The registries provide a service to doctors for identification, surveillance and management of families and individuals with high colorectal cancer risk from Familial Adenomatous Polyposis (FAP) and Hereditary Non-Polyposis Colorectal Cancer (HNPCC). The Centers for Disease Control of the United States provides, royalty-free, Registry Plus software for collecting and processing cancer registry data compliant with national standards established by health professionals and regulators to understand and address the burden of cancer more effectively.
Polyposis registries have been used in numerous academic studies to assess morbidity and mortality of colorectal cancer related to FAP, and use of registry data has resulted in improved treatment and reduced mortality from polyposis-related colorectal cancer.
The University of Texas M. D. Anderson Cancer Center maintains an international list of registries related to hereditary colon cancer.
Some of the registries include:
North America
Steve Atanas Stavro Familial Gastrointestinal Cancer Registry (Mount Sinai Hospital, Toronto, Ontario, Canada)
Europe
St. Mark's Hospital Polyposis Registry (St Mark's Hospital Foundation, St Mark's Hospital, Middlesex, United Kingdom)
Asia
Singapore Polyposis Registry (Singapore General Hospital, Singapore)
See also
Familial Adenomatous Polyposis
Acknowledgement and Attribution Regarding Sources of Content
Some of the initial content on this page may be incorporated in part from copyleft sources in the public domain including wikis such as Wikipedia and AskDrWiki. Drug information for patients came from the The National Library of Medicine. Infectious disease information may have come from the Centers for Disease Control (CDC). Differential Diagnoses are drawn from clinicians as well as an amalgamation of 3 sources: 1.The Disease Database; 2. Kahan, Scott, Smith, Ellen G. In A Page: Signs and Symptoms. Malden, Massachusetts: Blackwell Publishing, 2004:3; 3. Sailer, Christian, Wasner, Susanne. Differential Diagnosis Pocket. Hermosa Beach, CA: Borm Bruckmeir Publishing LLC, 2002:7 .
